Life

Nov 08, 2018 by Shehera Vega Sánchez

Mom Accepts Her Body After Her Baby Inherits Her Disorder

All of her life the 25-year-old Vanessa Cornelio has struggled with her body. At four-years-old, she got diagnosed with neurofibromatosis (NF), scoliosis and kyphosis. These conditions had a significant effect on her. Recently she got the news her son suffers from NF as well. Vanessa decided it was time to start accepting herself and her body.

Pain
NF rare genetic disorder, which causes tumors to grow on nerve tissue all over Vanessa's body. Her scoliosis and kyphosis make her spine curve in the wrong way, and her backbone bends outward. Because of this, Vanessa has had to undergo numerous surgical procedure.

In total, she had fifteen operations, but her situation hasn't improved that much. "The pain is just there," she told the Daily Mail. "I don't know how to describe it. A backache, hip ache, shoulder pain, neck pain – there is just a lot of pain." Vanessa started to hate her body and was depressed for a long time.

Love
Luckily a special encounter with Daniel Robles turned her life upside down. The two met in a restaurant four years ago. "Vanessa didn't tell me about her conditions [at first]…eventually, she ended up showing me," Daniel said. "When I saw her I saw just another girl. And then ended up falling in love with her."

Vanessa: "Daniel loves me the way I am, for how I am, and he wants me to do whatever will make me happy, and I love that. I never had that. Never thought I was going to have anyone like him in my life." Not long after that, the couple got engaged, and in no time Vanessa was expecting a baby boy.

Bad News
Although the pregnancy went quite well, considering Vanessa's health issues, the parents got some shocking news after little Daniel Jr. was born. He too suffered from NF. "I felt scared," Vanessa admits. "Those tumors can grow on your brain. Those tumors can grow on your feet. Those tumors can grow on your stomach. I still don't know what he can get as he gets older but I know what to look out for. I know what to watch for. I am doing all I can to make sure he is okay."

But there was one thing she did have in her own hands. She knew she had to change the way she felt about herself. Vanessa: "I don't want my son to see his mother depressed. I don't want him to see me not doing anything because of what I have."

Positive Body Image
After the birth of her son, the brave mom started a YouTube channel in which she documents her life. She even posted an honest picture of herself, including her tumors, on social media.

"It wasn't until I had my son and Daniel came into my life for me to realize who I am and accept myself,'" Vanessa said. "Daniel accepts me, my son accepts me, and that's all that matters."



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