When Brielle Burr was born, doctors had only given her months to live. But, with this Utah girl's feisty spirit and what her parents describe as many blessings from God, she recently celebrated her 4th birthday.
Brielle was diagnosed at birth with Beare Stevenson Syndrome, a life-threatening disorder that causes abnormalities in the fusings of the facial bones. It is incredibly rare.
"We were told there
Candace and her husband Ryan have been emboldened to share Brielle's story through social media, to give hope to other parents and share the miracle of Brielle's life.
"Brielle, she means everything to our family. She has totally changed our world and we don't know what we would do without her," says Ryan. "There are days we worry that we're going to lose her that day and we count our blessings every day that she's here when we wake up."
"In spite of all her challenges, Brielle has shown feistiness and spirit from the very beginning. Her positive attitude helps everyone who meets her to realize that they have nothing to be negative about," Candace shared in an interview with PEOPLE magazine.
Although it has been difficult not knowing how long she will live, Candace says, but she too has learned to treasure every day.
"I never bought Christmas presents too early and I didn't plan a Halloween costume for Brielle too soon," she says, "because it was difficult to think of her not being there for those things. But now, I've finally decided that's just no way to live; so, we absolutely plan the future with Brielle in it. She's a fighter and we're not going to give up on her."